Useful Links to Support and Resources

Understanding TRK Fusion Cancer

• NTRK gene fusions factsheet (Fight Colorectal Cancer) – https://fightcolorectalcancer.org/resources/ntrk-fusions/  
• Understanding genomic testing infographic – https://www.sarcoma-patients.eu/en/docman/informationmaterial/218-understanding-genomic-testing-in-sarcomas
• Cancer testing terms infographic – https://www.commoncancertestingterms.org/files/consistent-terms-infographic.pdf
• Pediatric NTRK gene fusions webinar – https://www.youtube.com/watch?v=KRR3e59PVqo
• Frequency of NTRK gene fusion across different cancers (for medical professionals) – https://oncologypro.esmo.org/oncology-in-practice/anti-cancer-agents-and-biological-therapy/targeting-ntrk-gene-fusions/overview-of-cancers-with-ntrk-gene-fusion/ntrk-gene-fusions-as-oncogenic-drivers/epidemiology-of-cancers-with-ntrk-gene-fusion
• Genetic cancer mutations  infographic – National Cancer Institute  https://www.cancer.gov/sites/g/files/xnrzdm211/files/styles/cgov_enlarged/public/cgov_infographic/100/000/4/files/NCI_CCG_Genetics_Infographic_v12_full.png?itok=_SyFymjW
• Check out our quick guide to NTRK gene fusion cancer

Treatment Options

• NTRK clinical trials – ntrkers.sparkcures.com
• All clinical trials – https://clinicaltrials.gov/ct2/results?cond=&term=ntrk+&cntry=&state=&city=&dist=
• Expanded access information – https://navigator.reaganudall.org/company-directory

Psychosocial Support

• Cancer patient support hotline and web chat – https://www.cancersupportcommunity.org/cancer-support-helpline
• For parents of pediatric cancer patients – https://momcology.org/

Financial Support

Some organizations offer patient assistance programs for specific treatments and genomic testing

• Genomic testing financial assistance – https://copays.org/funds/cancer-genetic-and-genomic-testing/
• Memorial Sloan Kettering Cancer Center – https://www.mskcc.org/insurance-assistance/assistance 
• Cancer-related expense reimbursement – https://www.cancer.org/treatment/finding-and-paying-for-treatment/understanding-financial-and-legal-matters/managing-costs/programs-and-resources-to-help-with-cancer-related-expenses.html
• For head and neck cancer patients – https://oralcancerfoundation.org/resources/financial-assistance/ & https://oralcancerfoundation.org/
• For cancer patients aged 21-39 – http://www.thesamfund.org/
• For pediatric cancer patients – https://negu.org/financial-support-charities-childhood-cancer/ & http://negu.wpengine.com/join/