NTRKers at HOPE Summit and International Thyroid Cancer Survivors’ Conference
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The NTRKers unite and support people affected by cancer with NTRK gene fusions
The NTRKers is a global, non-profit patient group, founded by patients and loved ones living with NTRK gene fusion cancer, and supported by leading clinical experts. Changes to the NTRK gene can cause normal cells to transform into cancer cells no matter where they are in the body. As a result, our community includes people with different tumor types – thyroid, lung, sarcomas, salivary gland and CNS tumors, to name a few. Although NTRK gene fusion cancer is rare, both adults and children are affected.
Our goal is for every adult and child with NTRK gene fusion cancer to have the best chance of living life to the fullest – and that means better access to testing, treatment, and research.
“As more people join the NTRKers, I’d love to hear how we can help increase peer support for parents and kids”
Miranda
“The NTRKers provides us with an unparalleled opportunity to connect with fellow NTRK fusion cancer patients and spark hope for our community together.”
Keith
“Connecting with others with a NTRK gene fusion provides just a little more hope that we are not in this fight alone”
Brianne
“It can be a lonely, isolating journey but we gain strength and motivation by helping others and sharing what knowledge we’ve learned along the way’”
Susan
“As more people join the NTRKers, I’d love to hear how we can help increase peer support for parents and kids”
Miranda
“My journey began in January 2016 with ear pain. It took 7 months to discover my tumor.”
Carter
“It can be a lonely, isolating journey but we gain strength and motivation by helping others and sharing what knowledge we’ve learned along the way’”
Susan
“As more people join the NTRKers, I’d love to hear how we can help increase peer support for parents and kids”
Miranda
“My journey began in January 2016 with ear pain. It took 7 months to discover my tumor.”
Carter
“As more people join the NTRKers, I’d love to hear how we can help increase peer support for parents and kids”
Miranda
“Connecting with others with a NTRK gene fusion provides just a little more hope that we are not in this fight alone”
Brianne
What is NTRK Fusion-Positive Cancer?
A NTRK gene fusion in cancer is like an accelerator getting stuck, causing cancerous cells to grow.
NTRK (neurotrophic tyrosine receptor kinase) genes have an important part to play in all our bodies. But in NTRK fusion-positive cancer, part of the normal NTRK gene splits and binds with part of a different gene, creating an altered new gene, a so-called ‘NTRK fusion oncogene’, which can cause cancer growth.
Resources
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Research finder
We’ve partnered with SparkCures to help patients find and connect with NTRK gene fusion cancer clinical trials. Click here to begin your journey.
NTRK Experts
A list of clinicians and physicians familiar with NTRK gene fusions
Frequently Asked Questions
Commonly asked questions by the NTRK community on diagnosis, treatment, testing and disease management
Sponsors and Partners
